International Albinism Awareness Day (IAAD) : International Albinism Awareness Day is observed globally on 13 Juneth To protect the human rights of individuals with albinism globally as well as to sensitize the public. The day is observed with the aim of educating people about the people who face albinism as they are suffering from various human rights violations. In short, it is to sensitize everyone about the genetic condition.
International Albinism Awareness Day (IAAD)
The Black Day dates back to the year 2015 when over 70 people were killed in which many were injured. Tanzania has experienced one of the worst human rights violations where people with albinism have faced violent attacks and even murders.
The superstition behind the deadly attacks has been due to the belief that people with albinism have magical powers. Therefore, the intention of the attackers was to kill them so that their organs could be used in some witchcraft. Because of the heartbreaking incident, it is the Tanzania Albinism Society, including other NGOs, that advocated for the rights of people with albinism.
Due to the widest possible scale of the sensitization process, this resulted in the first Albino Day being observed on May 4, 2006. The official stamp of the day finally occurred as the General Assembly of the United Nations declared June 13 as International Albinism Awareness Day, as it had been a day since. Resolution on 18 December 2014.
What is Albinism?
Albinism is a non-contagious and rare disease where both parents carry the gene to pass it on to the offspring. They do not necessarily have the signs and symptoms of albinism themselves.
The most obvious feature related to albinism is the lack of pigmentation in the hair, eyes and skin which makes the sufferer sensitive to bright light as well as sunlight. Therefore, the severity of the problem is related to how the majority of sufferers have little or no vision and a serious risk of developing dermatological cancer.
One in 20,000 people worldwide suffer from albinism. In some parts of Africa, the disease has gained comparatively greater impact and relevance. Since, according to statistics, in South Africa, one in four people suffer from it. While the situation is less alarming in Tanzania where one in 1,400 people experience the genetic condition. Unfortunately, albinism is not clearly understood clinically and socially.
Because of the weak sensitivity, there is still a long way to go when it comes to bullying people or targeting victims. Since, they are highly discriminated against. The unfortunate incidents of different families abandoning or being rejected by their children create a regrettable situation.
how to follow the day
Health organizations sensitize the public through organizing various educational seminars with the aim of educating all about this rare disorder.
This day also gives an opportunity to make everyone aware about this rare condition
One can also donate to organizations working to bring about a positive change.
People with albinism also need to be celebrated as they have excelled in their desired fields across the globe.
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